By reading the title, I’m sure you may have a clue of what this post will be about. Monday, my doctor gave my mom and I the results of the latest batch of lab work. With these results, he diagnosed me with Autoimmune Hepatitis. Today, I’ll be discussing what led up to the diagnosis and what that means for the future.
#MyHealthJourney| Autoimmune Hepatitis
These Past Few Months
In some ways, it seems like the diagnosis happened suddenly but that’s not true. Off and on since October, my doctor’s have been taking a serious look at my health. Prior to my ankle injury, my Hip Surgeon had me in physical therapy to get me prepped for surgery. The ligament tear in my ankle put a pause on everything. Some of my doctor’s started to wonder if some of my health issues were linked to an autoimmune disorder.
Following the ankle injury, I was diagnosed with Syncope and a racing heartbeat. All of a sudden, all of these diseases and disorders were getting thrown at me. At one time, they thought I had Ehlers-Danlos syndrome, Sickle cell anemia was mentioned. Every week, there was a new test or a new theory. I was looking back through some of my old posts, and I realized that my last health-related post was a while ago. But during this time, I didn’t want to provide anyone with false information.
To be honest, I’m not one for speculation. I figured it would be better to wait and give everyone the right information instead of correcting myself afterward. So we powered through with everything until we hit our first clue in December.
Point In The Right Direction
In December, we got the next batch of lab results. Nothing really stood out to me until I got my CRP results, my level was high. C-reactive protein (CRP) is basically a marker for inflammation. Some doctors use the results of this test help to help them diagnose autoimmune disorders. In my case, my doctor knew he was looking in the right direction. He started to test me for different autoimmune disorders.
I was diagnosed with Autoimmune Hepatitis using the Anti-Smooth Muscle Antibody Test (ASMA). As with most autoimmune disorders, your body begins to attack itself. The ASMA test measures the amount of antibody against actin (a protein produced by the liver.)
Letting Everything Sink In
I have honestly been all over the place. I’m sure other Spoonies and people suffering from Invisible Illnesses will understand this, but sometimes during the health journey, I felt like I would never find answers. For so long, I was told I was simply depressed and I just needed to exercise. So I am really grateful that I found doctors who were willing to dig and look for answers.
I admit that at first, I was really hesitant in discussing this. But then I realized that I was being selfish. Within reason, there are things that I won’t share on here but this community has become an integral part of my life. Sharing my health journey is a part of my blog and I hope that this can open up the discussion for others.
I hope this will kind of explain where I have been and what’s been going on recently. We were given the news on Monday, so I honestly don’t know much about Autoimmune Hepatitis. I have more testing to do in the near future, but I am okay. Now that I have talked about this, I’ll be getting back to my regular schedule.
I appreciate everyone’s patience and kind words. It truly means a lot to me.